I have worked in palliative care since the late 1980s. I was instrumental in developing and setting up a palliative care service within the National Health Care system in Iceland between 1990 and 2000. I have extensive experience and knowledge in person-centred palliative care, and I have for number of years led person-centred practice development, education and research in hospice and palliative care in partnership with Queen Margaret University. I have served on a number of development groups in relation to palliative care education and research and have published widely in palliative care research journals. I have has also taken part in developing and delivering national and international teaching programmes in palliative care including Iceland, the UK, Serbia, Uganda and India.
Affiliations to other organisations:
- Lothian Nursing and Midwifery Advisory Committee (LANMAC)
- NHS Lothian Clinical Academy Partnerships
- NHS Lothian NMAHPPS Strategic Research Steering Group
- Person-centred International Community of Practice (ICoP)
- SIGMA, Global Nursing Excellence
My research interest and activities are in person-centred palliative care. I have undertaken several research projects within this area.
Active research interests:
- Use of Virtual Reality in Palliative Care
- Development of Person-centred Culture and Practice in Hospice Care
- Clinical Research within Palliative and End of Life Care
- Palliative and End of Life Care in Care Homes
- Development of Person-centred Research Methodology and Methods
- Care of People with Dementia in Acute Hospital Settings
- Qualitative Research Methods
- Person-centred Research Methodology and Methods
I Supervise Doctoral students undertaking person-centred research, and I facilitate international programme for doctoral students undertaking person-centred research (SICoP) I am a module lead for 2 person-centered modules within the MSc Person Centred Practice Framework, Theory and Practice in Person-centredness and Leadership in Person-centredness.