Queen Margaret University Support After Covid-19

Queen Margaret University Support After Covid-19

health and social care delivery for Long Covid and influences on access to support across Scotland

Background to the Project 

From the start of the COVID-19 pandemic it became clear that people were experiencing illness of different kinds while socially isolating and/or feeling socially isolated.

Some people were in hospital wards or intensive care, and some were at home. We already knew that intensive care stays can affect people a great deal and mean they need different types of support later. We didn’t know what effect illness at home would have on people when the people who usually support them are not able to. Over time it became clear that some people had longer-term effects of COVID-19, which became known as ‘Long Covid’.

We carried out two studies, one funded by the Chief Scientist Office in Scotland, called the ‘Support After COVID Study’. In this study we carried out an international online survey and received 675 full responses. People completed this survey between July and August 2020,providing many insights into what it was like to be ill at that point in time. From the results, we developed recommendations to support people and consulted many people with different interests in the recommendations to help us improve them.

Of the people that took part in the international survey, 204 agreed to be contacted again after six months.We wanted to find out how things were going – whether they had been able to find support, how easy or hard this was, and whether anything had helped. Of the people we contacted, 98 (almost half) filled in our follow-up survey and 11 also agreed to a telephone interview that helped us to better understand their experiences.

We focused on people who had Long Covid and used people’s responses to:

  1. develop a resource with advice for people accessing services for Long Covid,

  2. write guidance for people providing services relevant to people with Long Covid

  3. write recommendations to inform policy and service design that relate to Long Covid and other impacts of the pandemic, and

  4. plan a series of short podcasts, interviewing people who have lived experience of Long Covid.


~Finding Support for Long Covid | August 2021